Helpful Resources

Meet Lauren - Beyond the Cure Scholarship recipient

Advocacy and Legislation

Alliance for Childhood Cancer
The ACC includes national patient-advocate groups as well as professional medical and scientific organizations. They collaborate to advance research and policies to prevent cancer.

American Society of Clinical Oncology
ASCO is a professional oncology society committed to conquering cancer through research, education, prevention and delivery of high-quality patient care.

The Children’s Cause for Cancer Advocacy
The Children’s Cause brings the voices of childhood cancer survivors and their families to national policies which affect them. Updates on relevant policies and issues are available on the website.


Children’s Oncology Camping Association, International
Connects children and families touched by childhood cancer to appropriate summer camps.

Kids Camp
This website lists oncology camps by region and state.

Clinical Trials

This comprehensive website offers information on government and pharmaceutical company sponsored clinical trials, as well as information on newly approved drugs.

Children’s Oncology Group
This website offers information about clinical trials and the Children’s Oncology Group, a network of hospitals that unite researchers at more than 200 leading children’s hospitals, universities, and cancer centers.

Information on understanding and finding clinical trials. The site contains information on more than 12,000+ open clinical trials.



This assistive-technology organization provides information about rehabilitation equipment.

Clearinghouse on Disability Information
The Clearinghouse provides information to people with disabilities by doing research and providing documents in response to inquiries regarding federal funding for disability-related programs.

Guide for students with disabilities to learn about careers in healthcare, overcome common school/workplace challenges and learn about disability rights and disclosure.

College Accessibility for Students with Disabilities
This organization has compiled a list of college scholarships and financial aid for students with learning disabilities, ADD/ADHD , psychiatric disabilities, visual or hearing impairments and physical disabilities.

National Center for Learning Disabilities
Conducts educational programs, provides services, and recommends instructional activities to aid those with learning disabilities.

National Disability Rights Network
Through training, technical assistance, legal support, and legislative advocacy, they work to create a society in which people with disabilities are afforded equal opportunity and full participation.

National Rehabilitation Information Center
It provides direct, personal and high-quality information to the disability and rehabilitation community. This website offers online publications, searchable databases and timely reference and referral data.


Children’s Defense Fund
Its “Leave No Child Behind” mission is to ensure every child a Healthy Start, a Head Start, a Fair Start, a Safe Start, and a Moral Start in life and successful passage to adulthood.

HEATH Resource Center
It provides information about educational support services, policies, procedures, adaptations and opportunities at American campuses, career-technical schools and other postsecondary training entities.

National Center for Learning Disabilities
Conducts educational programs, provides services, and recommends instructional activities to aid those with learning disabilities.

Emotional Support

The National Children’s Cancer Society Childhood Cancer Support Group
Private Facebook group that provides a compassionate and supportive environment for childhood cancer survivors and their parents/guardians. The group provides a supportive environment to connect with peers, share tips/resources and provide or receive encouragement.

American Cancer Society
A community of online survivors and their families with both chats and a message board. The community consists of adult and childhood cancer survivors.

Cancer Care
This site has many online professionally moderated forums for people living with cancer and their partners.

This website connects family and friends during a health crisis. It can ease the burden of keeping loved ones updated, while also providing a way for them to send their love and encouragement.

Cancer Support Community
This website has professionally mentored online support groups as well as a discussion board.

Imerman Angels
This group provides one-on-one cancer support: connecting cancer fighters, survivors and caregivers. They can partner a person fighting cancer with someone who has beaten the same type of cancer.

Youth Can Connect
A youth led nonprofit organization dedicated to connect and uplift isolated pediatric cancer patients while building friendships.


Americans with Disabilities Act (ADA)
Information on The Americans with Disabilities Act and current issues regarding disability rights.

Equal Employment Opportunities Commission
Information about EEO Laws, how to file a discrimination charge and statistical information.

Job Accommodation Network
Provides free information on how employers can accommodate people with disabilities.

This website has an interactive application for exploring occupations with accommodation features to assist in counseling people with disabilities.

Financial Support

Alex’s Lemonade Stand
Their Travel Fund helps families with travel expenses such as gas, parking and lodging.

American Cancer Society
The site provides a resource search engine based on your zip code.

B+ Foundation
The Foundation provides grants to minimize the financial hardship that is directly attributable to the child’s illness.

Cerner Charitable Foundation
Assists children with health problems by providing financial assistance for treatment, equipment, displacement and vehicle modifications.

Childhood Leukemia Foundation
This site offers a range of free services, including kid-friendly hats with human hair, gift baskets, gift cards, financial aid and sponsorships to pediatric-oncology summer camps.

Family Reach
Provides financial education, financial planning, resource navigation, and emergency relief funds to patients and caregivers facing a cancer diagnosis.

Go 4 The Goal
Assists families with financial and logistical burdens such as medical and household bills, travel for treatment, tuition assistance for education and enrichment activities.

Pinky Swear Foundation
Offers financial assistance for car payment, gas, grocery, utility bills and housing support.

Ronald McDonald House Charities
This site has guidelines and Ronald McDonald House locations across the country.

This organization provides education, encouragement, and empowerment to children with life-threatening conditions through the provision of items such hearing aids, wheelchair lifts, therapeutic tricycles, and much more.

United Healthcare Children’s Foundation
This foundation accepts grant applications from families who need financial help to cover the cost of child medical services such as speech, physical or occupational therapy, prescriptions, and medical equipment such as wheelchairs, orthotics and hearing aids.

Wigs for Kids
This nonprofit organization provides wigs and also accepts hair donations.

Verna’s Purse
Offers financial assistance for fertility preservation services to patients with economic challenges who are facing fertility threatening treatment.


Bereaved Parents of the USA
This organization offers support, understanding, compassion, and hope especially to newly bereaved parents, grandparents, and siblings. It provides publications and gatherings and has chapters throughout the country.

M.I.S.S. Mothers in Sympathy and Support
This site has inspirational poetry, articles and information for professionals. It also offers families a way to communicate their story and share with others who are also suffering through grief.

The Compassionate Friends
This organization offers brochures, conferences, sibling chats, cyber friends and pen pals to people suffering the loss of a child.

Health Insurance
This site provides information on insurance options, quality care and information on new healthcare reform.

National Association of Insurance Commissioners
Provides information and contacts on state health insurance programs.

Patient Advocate Foundation
They offer patients free assistance in mediating with insurance companies to assure access to care, maintenance of employment and preservation of their financial stability.

Health and Prevention

American Heart Association
This is a great resource for getting healthy and provides information on nutrition, physical activity, weight management, stress management and quitting smoking.

American Institute for Cancer Research
This website is dedicated to diet and its relationship to cancer and cancer prevention.

American Lung Association
Tips on how and why to quit smoking.

This site contains diet information during and after treatment.

The American Skin Association
The American Skin Association is a leading force in efforts to defeat melanoma, skin cancer and disease. Their mission is to advance research, champion skin health and drive public awareness about skin disease.



American Cancer Society
The site offers a tool to assist in deciding treatment options and questions to ask your doctor. It also contains descriptions and guides for the main forms of cancer treatment.

Bone Marrow & Cancer Foundation
This Foundation offers financial assistance and free support services to bone marrow/stem cell transplant patients and their families.

Childhood Cancer Guides (CCG)
Publishes books that provide clear explanations of the various types of childhood cancer; descriptions of state-of-the-art treatments for childhood cancers; emotional support for every member of the family and access to helpful resources.

Children’s Oncology Group
Lists the hospitals which are members of the Clinical Oncology Group in the United States.

Leukemia and Lymphoma Society
The site offers disease and treatment information for leukemia and lymphoma patients and their families. On-site questions and answers.

National Brain Tumor Society
The site offers support and education for brain tumor patients and their families and allows users to e-mail questions to a nurse specializing in brain tumors.

National Cancer Institute
Provides information on clinical trials, cancer statistics, research and other cancer related news.


Beyond the Cure Ambassador Scholarship Program
The National Children’s Cancer Society awards college scholarships to childhood cancer survivors who have demonstrated the ability to overcome the difficult challenges of cancer with determination and motivation. Fifty-eight (58) $3,500 scholarships will be awarded each academic year.

Children’s Cancer Cause
They award $2,000 competitive scholarships to childhood cancer survivors and mentor them towards completing a childhood cancer advocacy project of the scholars choice.

Information about college scholarships, loans and other types of financial aid.

National Collegiate Cancer Foundation
$1,000 competitive awards are given based upon financial need, quality of essay and recommendations, displaying a “Will Win” attitude, and overall story of cancer survivorship.

Patient Advocate Foundation
They award $3,000 competitive scholarships to those diagnosed with and/or been actively treated for a life threatening disease within the past 5 years.

The SAMFund
They provide financial assistance to young adults as they move forward with their lives after cancer. Their grants can be used towards medical bills, insurance premiums, tuition, loans, computers, etc.

The Ulman Fund for Young Adults
$2,500 scholarships for those 15-39 years old during their own diagnosis/treatment or during the diagnosis/treatment of a parent or sibling.

Tim and Tom Gullikson Foundation
Tim and Tom Gullikson Foundation Scholarships are available to brain tumor patients/survivors and/or children of brain tumor patients/survivors. Extra consideration is given to applicants who have an affiliation or connection to the tennis community.


Beyond The Cure
Here you can find information regarding all aspects of cancer survivorship. A survivor or family member can also create a personalized risk assessment specific to diagnosis and treatment.

Cancer Survivors Network
Members may participate in public and private chat with other cancer survivors.

Childhood Cancer Guides (CCG)
Publishes books that provide clear explanations of the various types of childhood cancer; descriptions of state-of-the-art treatments for childhood cancers; emotional support for every member of the family and access to helpful resources.

The site explains what treatments may affect fertility, as well as preventative steps to take prior to treatment.

National Coalition for Cancer Survivorship
Their mission is to advocate for quality cancer care for all people touched by cancer. This website lists the national programs related to cancer survivors.

The OncoFertility Consortium
The OncoFertility Consortium provides information on preserving fertility before and during cancer treatment and protecting hormonal health after treatment.

Survivorship Guidelines-COG
This site offers guidelines, screening recommendations, information on long-term follow-up needs and patient education materials for cancer survivors.


Bone Marrow & Cancer Foundation
This Foundation offers financial assistance and free support services to bone marrow/stem cell transplant patients and their families.

Children’s Organ Transplant Association
Offers fund-raising guidance to families who need to raise money for transplants. It has some emergency funds available.

National Foundation for Transplants
This organization assists families with fund-raising for the cost of transplants not covered by insurance and has links to most major transplant centers in the United States.


Air Care Alliance
This is a nationwide league of humanitarian flying organizations dedicated to offering free flights for patients.

Air Charity Network
This not-for-profit organization flies patients who cannot afford commercial airfare to obtain specialized care.

Corporate Angel Network
Their sole mission is to help cancer patients access the best possible treatment by arranging free travel to treatment across the country using empty seats on corporate jets.

Mercy Medical Angels
They offer a patient travel helpline, airline travel program, volunteer pilot travel program and ground travel program.

Patient Airlift Services (PALS)
They arrange free air transportation for individuals requiring medical diagnosis, treatment or follow up, as well as compassionate purposes such as oncology camps.

Wish Foundations

Kids Wish Network
Grants wishes for children who are between the ages of 3- 18 and have a life-threatening illness. Anyone can refer a child, including a family member, friend, nurse, doctor, or social worker.

Make-A-Wish Foundation
Fulfills wishes for children with a life-threatening medical condition who have reached the age of 2 ½ and are younger than 18 at the time of referral.

Sunshine Foundation
Their sole purpose is to answer the dreams of chronically ill, seriously ill, physically challenged and abused children ages 3-18.