Helpful Links

Camps | Chat Rooms/Message Boards | Clinical Trials |  Disabilities | EducationFor Kids | Grief | Health Insurance and Legal Information | Medical | Nutrition | Scholarships | Smoking Cessation | Support, Advocacy and Resources | Survivorship | Transplant | Transportation | Wish Foundations |
* Link Request

Camps

Camp Sunshine
Families of cancer patients may apply to attend a weeklong camp at no charge.
Children's Oncology Camping Association International 
Lists contact information for all of the member camps.
Kids camp.com
Lists oncology camps by region and state.

Back to top

Chat Rooms / Message Boards

The NCCS Online Community 
For parents, caregivers & survivors of childhood cancer to connect, share and offer support to one another.
4YOUth List
This is an online-support mailing list for young people (12-21) with cancer, who may be on or off treatment.
Cancersurvivors.org
This chat room allows you to search by topic and has a variety of topics including Adult survivors of childhood cancer and parents of childhood cancer patients. They also have a weekly general chat session.
Care Zone
This social utility serves individuals and families that care for children, parents or loved ones.   It allows family members and health care workers to share details ranging from updates to patient information.  Through this site one can record relevant contacts, details on medications, to-dos and notes, and any document you upload.
CaringBridge
CaringBridge offers free, easy-to-create websites to connect family and friends during a health crisis. A CaringBridge site eases the burden of keeping loved ones updated, while also providing a way for them to send their love and encouragement.
OncoChat
Online peer support for cancer survivors, families and friends.
Teens Living With Cancer
This discussion board is for teens with cancer and their families. You do not have to register to post messages on this monitored site.

Back to top

Clinical Trials

CenterWatch
This comprehensive website offers information on government- and pharmaceutical company-sponsored clinical trials, as well as information on newly approved drugs.
Steve Dunn's Cancer Guide
This is a detailed explanation of clinical trials, including questions to ask, where to go and what to look for, from first-hand experience.
The National Cancer Institute
Information on understanding and finding clinical trials. The site contains information on more than 1,2000+ open clinical trials.

Back to top

Disabilities

ABLEDATA
This assistive-technology organization provides information about products and rehabilitation equipment.
Clearinghouse on Disability Information
The Clearinghouse provides information to people with disabilities or to anyone requesting it. Conducts research and provides documents in response to inquiries. Information provided includes areas of federal funding for disability-related programs.
Disability Rights Education & Defense Fund
The mission is to advance the civil and human rights of people with disabilities through legal advocacy, training, education and public-policy and legislative development.
National Disability Rights Network
Through training and technical assistance, legal support, and legislative advocacy, it works to create a society in which people with disabilities are afforded equal opportunity and full participation, by exercising choice and self-determination.
National Dissemination Center for Children with Disabilities
It serves the nation as a central source of information on disabilities, IDEA, No Child Left Behind and research-based information on effective educational practices.
National Library Service for the Blind and Physically Handicapped
Through a national network of cooperating libraries, NLS administers a free library program of Braille and audio materials, circulated to eligible borrowers in the U.S. by postage-free mail.
National Rehabilitation Information Center
It provides direct, personal and high-quality information to the disability and rehabilitation community. NARIC's website offers online publications, searchable databases and timely reference and referral data.

Back to top

Education

Center for Law and Education
CLE strives to make the right of quality education a reality for all students throughout the nation and to help enable communities to address their own public-education problems effectively, with an emphasis on assistance to low-income students and communities.
The Children's Defense Fund
Its “Leave No Child Behind” mission is to ensure every child a Healthy Start, a Head Start, a Fair Start, a Safe Start, and a Moral Start in life and successful passage to adulthood, with the help of caring families and communities.

The Council for Exceptional Children (CEC)
CEC advocates for appropriate governmental policies, sets professional standards, provides continual professional development, advocates for newly and historically underserved individuals with exceptionalities, and helps professionals obtain conditions and resources necessary for effective professional practice.

National Center for Learning Disabilities
Works to offer solutions and increase opportunities for all individuals with learning disabilities. Conducts educational programs, provides services, and recommends instructional activities to aid those with learning disabilities in achieving their full potential.
National Clearinghouse on Postsecondary Education for Individuals with Disabilities
It provides information about educational support services, policies, procedures, adaptations and opportunities at American campuses, career-technical schools and other postsecondary training entities.

Wrightslaw
Updated and accurate information on special education laws.

Back to top

For Kids

Band-Aids and Blackboards
This website is designed for children of all ages, and is divided into categories for children and teens. The focus is how to deal with medical problems of any kind.  The site contains helpful hints for parents, teachers and other professionals.
Cancer Kids
A website dedicated to children with cancer. This is a place where they can share their stories. It also has a ‘memorials’ section. 
Kids Cancer Network
Activities for kids, as well as a message board and contests. Some activities available in Spanish.
Look Good Feel Better
This website for teens deals with appearance issues, as well as relationship and emotional issues.
Starlight Children's Foundation
A website for young adolescents, it features a video on how to discuss your diagnosis with friends.
Teens Living With Cancer
This website gives medical explanations, advice on talking to peers and family and many other emotional-support ideas for teenagers. In English and Spanish. 
The Songs of Love Foundation
This organization provides personalized songs for children and teens facing tough medical, physical or emotional challenges, free of charge.  These one-of-a-kind compositions are created by professional songwriters and can be done in almost any language and musical style.

Back to top

Grief

Facing Bereavement 
This website was formed to offer a unique reference point on facing and dealing with bereavement.  It has up to date articles and newsletters written by professional journalists and experts.
Growth House, Inc.
This site contains a large search engine that covers information on palliative care, including death and grief. It also offer tips on finding a support group, funeral planning and a chat room with drop-in conversations and scheduled programs.
Hospice Net
Offers information on grief, saying goodbye, pain relief and many other topics dealing with death. On the site, readers may also locate the nearest hospice center.
Kidsaid
This site provides a safe place for kids to share and help each other cope with grief.
M.I.S.S. - (Mothers in Sympathy and Support)
This site has inspirational poetry, articles and information for professionals. It also offers families a way to communicate their story and share with others who are also suffering through grief.
The Compassionate Friends
This organization offers brochures, conferences, sibling chats, cyber friends and pen pals to people suffering the loss of a child.

Back to top

Health Insurance & Legal Information

American's Health Insurance Plans
This site provides links to many of the nation’s primary health care plans as well as current information relating to health care policy.
Health Hippo
This site offers legal information on everything from drug approval to social security.
National Coalition for Cancer Survivorship
This site gives up to date policy information on issues that are important to cancer survivors.
Patient Advocate Foundation
Patient Advocate Foundation's Patient Services provides patients with arbitration, mediation and negotiation to settle issues with access to care, medical debt, and job retention related to their illness.
U.S. Department of Health and Human Service
U.S. government site which provides information on Medicaid and Medicare complaints.

Back to top

Medical

American Academy of Pain Management
Discusses the Patients' Bill of Rights and has information on locating a pain clinic.
American Cancer Society
The site offers a tool to assist in deciding treatment options and questions to ask your doctor. It also contains descriptions and guides for the main forms of cancer treatment. This is a bilingual website. 
American Society of Clinical Oncology
The site offers an explanation of clinical trials, as well as a guide for finding an oncologist. It also contains information on all types of cancer, resources and coping strategies. 
Chemotherapy.com 
This website provides chemotherapy treatment information for patients and caregivers.  It includes helpful information on types of chemotherapy, resources, questions to ask your doctor, and insurance and tax tips.
Lymphoma Research Foundation
The site offers information specifically on lymphoma including clinical trials.
InteliHealth
Offers easy to understand descriptions of all types of childhood cancer along with information on symptoms, prognosis, treatment and nutrition information.
Leukemia and Lymphoma Society
The site offers disease and treatment information for leukemia and lymphoma patients and their families. On-site questions and answers.
MedLine Plus
This user-friendly website provides information and links about cancer diagnoses, pharmaceutical information and also abstracts and journal articles. It is updated frequently and has some sources in Spanish.
National Brain Tumor Society
The site offers support and education for brain tumor patients and their families and allows users to e-mail questions to a nurse specializing in brain tumors.
National Cancer Institute
This section details information on cancer clusters and who to contact if you think you may be living in one.
MedBioWorld
This is one of the largest sites for medical journals online.

Back to top

Nutrition

American Institute for Cancer Research
The site offers information on nutrition including recipes for cancer patients.
Arbor Nutrition Guide
This is a comprehensive nutrition site with links to many nutrition websites.
Cancer Nutrition Center
This site offers basic nutrition information.
InteliHealth
This excellent website offers a range of information with complex to simple answers to nutritional needs questions. Readers can also email questions to "Ask the Expert".

Back to top

Scholarships

Beyond The Cure Scholarship
The National Children's Cancer Society
Andre Sobel River of Life Foundation
An award of $5,000 and honorable mentions of $1,000 are given to United States citizens who are survivors and under the age of 21. This is an essay competition. 
Cancer Survivors’ Fund
The mission of the organization is to provide scholarships and assistance for medical expenses to those diagnosed with cancer, receiving treatment for cancer or in remission, to give them a new purpose and meaning in life. The application and criteria are both online.
Carolyn’s Compassionate Children
A college-scholarship committee selects recipients based on personal character, financial need, successful completion of high school and community service. Awards are $1,000 to be used for college education.  You may reach them at 203-550-1062 or email at help@change.org.
Financial Aid Information Page
This is a comprehensive guide to getting scholarship information but is not exclusive to cancer patients. It offers you a free search as well as basic financial information.
National Collegiate Cancer Foundation
One-thousand-dollar competitive awards are given based upon four criteria: financial need; quality of essay and recommendations; displaying a ‘will-win’ attitude; and overall story of cancer survivorship.
Patient Advocate Foundation
This site has criteria and a downloadable application for a $5000 annual scholarship for cancer survivors.
Pediatric Brain Tumor Foundation
The foundation offers scholarships for brain tumor survivors.
Stephen T. Marchello Scholarship Foundation
Awards up to $2,500 in scholarships to one or more survivors of childhood cancer. The application can be found online.
The Ryan Mullaly Second Chance Fund
Candidates must be United States citizens who were diagnosed with cancer between the ages of 13 and 20.
The SAMFund
On-line inquiry about grants and scholarships. The SAMFund assist young adults transitioning into the adult world by providing financial assistance.

Back to top

Smoking Cessation

American Lung Association 
Offers tips on smoking cessation as well as medical explanations that reinforce quitting.
QuitSmoking.com
This website has a message board for people who are trying to quit smoking, as well as tips from other smokers and methods of quitting. There is advertising for products that assist in the process.
Tobaccofree.org
This is not-for-profit organization offers tips on smoking cessation.

Back to top

 

Support, Advocacy, and Resources

American Cancer Society
The site provides a resource search engine based on your zip code.
Cancer Care
Offers information and online-support groups. 
Cancer Fund of America
A nonprofit organization that offers medical supplies nationally. The website lists available supplies.
Childhood Leukemia Foundation
This site offers a range of free services, including kid-friendly hats with human hair, gift baskets, gift cards, financial aid and sponsorships to pediatric-oncology summer camps.
Clayton Dabney Foundation for Kids with Cancer
Provides financial assistance for families when their child is diagnosed with cancer. The criteria and application, which must be completed by a professional, are online. 
First Hand Foundation
Assists children with health problems by providing financial assistance for treatment, equipment, displacement and vehicle modifications.
Joe's House
Cancer patients and their advocates are provided a national online directory of lodging accommodations near their hospital.
Leukemia and Lymphoma Society
This organization offers financial assistance, back-to-school information, support groups and a resource center.

National Brain Tumor Society
The site contains a chat room as well as conference schedule for brain tumor patients and their families.
National Respite Locator Service
Lists respite services for every state, including contact numbers. 
NeedyMeds
This website offers information regarding financial assistance for pharmaceuticals.
Ronald McDonald House Charities
This site has guidelines and Ronald McDonald House locations across the country. 
United Healthcare Children's Foundation
This foundation accepts grant applications from families who need financial help to cover the cost of child medical services such as speech, physical or occupational therapy, prescriptions, and medical equipment such as wheelchairs, orthotics and hearing aids.
Wigs for Kids
This nonprofit organization provides wigs and also accepts hair donations.

Back to top

Survivorship

Beyond the Cure
The NCCS sponsored website contains information regarding all aspects of cancer survivorship. It also allows the survivor or family member to create a personalized risk assessment specific to diagnosis and treatment. 
Cancer Survivors Network
After joining, members may participate in public and private chat with other cancer survivors.
Cancervive
This website is maintained by a childhood cancer survivor. It contains educational material for survivors.
Childhood Cancer Guides is a charitable organization serving the childhood cancer community that provides explanations of the types of childhood cancer and state-of-the-art treatments; emotional support for families and access to helpful resources.
fertileHope
This organization meets the profound needs of patients whose medical treatments present the risk of infertility. The site explains what treatments may affect fertility, as well as preventative steps to take prior to treatment.
National Coalition for Cancer Survivorship
Lists the national programs related to cancer survivors. The website is in Spanish and English. 

Back to top

Transplant

Blood & Marrow Transplant Information Network
This site has an excellent drug database where you can get detailed descriptions of drugs and their side effects. You can also search for transplant centers by disease or type of marrow transplant needed.
BMT Support Online
This is an online support organization with a chat room for people with an interest in bone-marrow transplantation.
Children's Organ Transplant Association
Offers fund-raising guidance to families who need to raise money for transplants. It has some emergency funds available. 
Cordblooddonar.org
This site offers valuable information on how to find a private cord blood bank where you can store cord blood for family members, as well as basic cord blood-transplant information.

ExploreBMT.org ExploreBMT™ is an easy-to-search online tool that provides direct access to information about marrow and cord blood transplantation (also known as BMT). From diagnosis through survivorship, patients and their loved ones can use ExploreBMT to browse resources and services from respected patient organizations.

National Foundation for Transplants
This organization assists families with fund-raising for the cost of transplants not covered by insurance and has links to most major transplant centers in the United States.
National Marrow Donor Program
This site answers basic questions on bone marrow transplant and donation. It is an international bone marrow registry.
Help Hope Live
This organization aids in raising money for transplants and related expenses.
The Bone Marrow Foundation
This nonprofit organization offers financial support to families experiencing bone-marrow transplantation at one of its affiliated hospitals. The site provides basic information about bone-marrow transplants.

Back to top

Transportation 

Air Charity Network (formerly Angel Flight America)
This not-for-profit organization flies patients who can not afford commercial airfare to obtain specialized care. 
Angel Flight West
Arranges free air travel for children with serious medical conditions. Their network of 1,600 pilots throughout the 13 western states donate their aircraft, piloting skills, and all flying costs to help families in need, enabling them to receive vital treatment.

Corporate Angel Network
Corporate Angel Network is the only charitable organization in the United States whose sole mission is to help cancer patients access the best possible treatment for their specific type of cancer by arranging free travel to treatment across the country using empty seats on corporate jets.

Mercy Medical Airlift
Links to charitable air-transportation organizations.
National Patient Travel Center
Provides information about all forms of charitable, long-distance medical air transport and provides referrals to all appropriate sources of help available in the national network.
PALS
Arranges free air transportation for individuals needing medical diagnosis or treatment. 
The Air Care Alliance
This is a nationwide league of humanitarian flying organizations dedicated to community service. They offer free flights for patients. Contact information is on the site.

Back to top

Wish Foundations

Children's Hopes & Dreams Foundation
The site does not accept referrals, but the organization grants wishes for seriously ill patients and also matches pen pals.
Make-A-Wish Foundation
This site offers information in Spanish and English. Wish referrals can be made online.
Sunshine Foundation
Grants wishes to children suffering from terminal or chronic illnesses throughout the country and the world.
Wishing Well Foundation USA
Grants wishes to terminally ill children between ages 3 to 18. Online application. 

Back to top