• Your Donation Dollars At Work
  

  Your support helps children like Justin survive!

  When he was just three years old, Justin was diagnosed with Stage 4 Neuroblastoma. "Because it is rare, we searched for a doctor that primarily treats this type of cancer," explained Justin's father, Jon. "We left our home in Tampa and ventured to New York City for treatment." Thanks to your ongoing support, the NCCS makes sure children like Justin get the specialized treatment they need, no matter where it is located. "We don’t know what we would do if we didn't have the NCCS' help!” said Jon. "Thank you!"
  
  

• Survivor Stories
  

  Meet Chelsea

  "The money I received helped out so much. I am so grateful for their help." –Chelsea's mom, Cassi
  Click here to read more of Chelsea's story.
  
  

• Partner Spotlight
  
  The NCCS is proud to partner with Agelity, a national provider of discount prescription drug cards. The NCCS card provides users significant discounts on prescription medications at over 55,500 participating pharmacies nationwide.
  
  

Medical

Treatment Summary

A Treatment Summary is an important record to reference for the rest of your child's life. As they grow, it will provide your child’s future healthcare team an accurate and detailed medical record.

The following information should be included:

• Child's diagnosis, including stage and location of cancer
• Date and child’s age when diagnosed
• Treatment(s) date and duration
• Treatment providers contact information
• Chemotherapy drugs, total dosages, frequency and modality
• Copies of pertinent X-rays, MRIs and CT scans
• Surgery date(s) and type, including placement of central-line catheters
• Radiation, including body area treated and total dosage
• Date and type of transplant, as well as treatments in preparation for transplants
• Complications and follow-up recommendations
• Previous and current medications
• Date and number of relapses
• Blood transfusions
• Blood counts and reactions to medications
• Clinical trial(s) participation
• Late effects and recommended testing

The summary can also be used to record changes weight, body functions, sleep pattern, etc. in reponse to medications and procedures. This information will help you recognize any patterns associated with a specific treatment which can be discussed with your child’s physician. Always have the doctor or nurse spell and explain unfamiliar words.